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PARTNERS 2017-05-30T06:20:50+00:00

The NeuroCare Network is an innovative alliance of not-for-profit organisations working together to help people living with progressive neurological and neuromuscular disease.

Each organisation brings its unique perspective to inform our collective expertise. Together we are working towards better shared outcomes for the people we represent. View details of our current projects here.

Alzheimer’s Australia (Qld)

Alzheimer’s Australia represents the more than 353,800 Australians living with dementia and the estimated 1.2 million Australians involved in their care. We advocate for the needs of people living with all types of dementia, and for their families and carers, and provide support services, education and information.

Alzheimer’s Australia (Qld)’s mission is to reduce the impact of dementia on the community. We do this by providing education, information and support for people with dementia, their families and carers. We also work to raise public awareness and understanding of dementia in the wider community.

For more information, please visit the Alzheimer’s Australia (Qld) website www.qld.fightdementia.org.au.

Friedreich’s Ataxia Network (F.A.N.)

Friedreich’s Ataxia (FA) is a degenerative, genetic, neurological disease that appears predominantly in children and teenagers. FA causes difficulty walking, talking and performing everyday functions, soon leaving sufferers wheelchair-bound. It’s a progressive condition associated with vision, hearing and speech failure, combined with severe heart disease, scoliosis and diabetes and greatly reduced life expectancy.

Friedreich’s Ataxia Network’s mission is to foster a positive outlook among people with FA and their families, and to assist them achieve their potential. We compile relevant and timely information on FA and make it readily available and promote and support research in any area relating to FA. We also assist in clinical trials where appropriate, and assist in educating professionals through participation in seminars and information sessions.

For more information, please visit the Friedreich’s Ataxia Network’s website www.fan.asn.au.

Leukodystrophy Resource and Research Organisation Inc.

The term Leukodystrophy refers to a group of genetic disorders that are characterised by the imperfect growth, development or maintenance of the white matter which is known as myelin, produced for the central nervous system. The major purpose of the myelin is to increase the speed of transmission of an impulse (message) to the next neuron and prevent the electrical current from escaping. When this process is disrupted or destroyed by a dysfunctional metabolic process, with a genetic cause and a progressive clinical course, it can be classified as a Leukodystrophy. There are some 52+ forms of the diseases that come under the banner of a Leukodystrophy.

The Leukodystrophy Resource and Research Organisation (LRRO) helps to meet the urgent need to supply and support resources and research into all the Leukodystrophies and Leukoencephalopathies that may be closely allied.

Based in Queensland, the LRRO actively pursues the latest in scientific, medical and social research to enhance the lives of people affected by Leukodystrophy, with the ultimate aim of finding a cure.

MND and Me Foundation

The MND and Me Foundation Limited is a not-for-profit organisation that was formed to raise awareness of Motor Neurone Disease (MND) and its impact in the community.

We saw a need to assist people living with MND and their families to maintain their independence and quality of life for as long as possible. The Foundation intends to contribute financially toward research into finding a cure, but until one is found, our major objectives are to ensure those who have to live with this terrible disease and their families are supported by the Foundation both in financial and non-financial ways.

For more information, please visit the MND and ME Foundation website www.mndandme.com.au.

Muscular Dystrophy Queensland

Muscular dystrophy is a neuromuscular, genetic disorder which results in the progressive deterioration of muscle strength and function. While most forms of muscular dystrophy occur in babies or children, some others appear in late adolescence or adulthood. It’s estimated that there are more than 20,000 people in Australia who have some form of neuromuscular disease.

Muscular Dystrophy Queensland builds on the hard work of our earlier volunteers to provide services to clients and their families. Muscular Dystrophy Queensland is working closer than ever with other service providers, Queensland Health, disability services and other government agencies to ensure that people with MD and their carers are aware of, and have access to, preventative health education, services, and community support.

For more information, please visit the Muscular Dystrophy Queensland website www.mdqld.org.au.

Youngcare

Youngcare was established in 2005 following the inspirational story of one woman’s battle to find relevant and dignified care. Currently over 7,000 young Australians (under the age of 65) with full-time care needs are living in aged care simply because there are few alternatives. There are also 700,000 more young Australians being cared for at home by family and friends, often with limited support.

All young people deserve to live young lives. Youngcare is committed to raising awareness of the issue across the nation so that we can drive change and create real choices for young Australians and their families.

For more information, please visit Youngcare’s website www.youngcare.com.au.

Epilepsy Queensland

Epilepsy affects as many as two per cent of Queensland children and adults. There are more people with epilepsy than with muscular dystrophy, cerebral palsy, Parkinson’s disease, motor neurone disease and several others combined. Epilepsy is recognised as the world’s most common serious brain disorder (WHO, 1997). While in most cases it is diagnosed during the school years, epilepsy may affect anyone at anytime. More people are being diagnosed later in life.

Since 1969, Epilepsy Queensland Inc has been dedicated to improving the quality of life of people with epilepsy and their carers/families through information, support, counselling, education, training, advocacy and research. Considerable effort is put into increasing public awareness and raising community understanding of epilepsy. We offer inservice training for health, disability and education organisations so they are better placed to help people with epilepsy.

For more information, please visit the Epilepsy Queensland website www.epilepsyqueensland.com.au.

Huntingtons Queensland

Huntington’s disease (HD) is a genetic neurodegenerative disease. This means that it is a disease of the brain and is passed down through a family line. There is currently no cure for HD, but there are some treatments that can help to ease certain symptoms. From the onset of symptoms, people with HD carry a life expectancy of 10 to 25 years.

Huntingtons Queensland was established as a small voluntary support group in 1976 and is now a well-established professional centre providing support to hundreds of families and professionals throughout Queensland. The Association is a member organisation of the national and international Huntington’s Disease Associations. Fundraising through membership contributions, donations and other activities us expand our services and awareness of HD.

For more information, please visit the Huntingtons Queensland website http://huntingtonsqld.org.au/.

MND Association Queensland

The Motor Neurone Disease Association Queensland (MNDAQ) is committed to supporting and maintaining the quality of life for all people living with motor neurone disease (MND) within Queensland.

We run an information and referral advisory service that provides essential information to families, health professionals and the general public, physical and emotional support to patients and carers, and referral to appropriate medical, health and community services.

For more information, please visit the MND Association Queensland website www.mndaq.org.au

MS Queensland

Multiple sclerosis (MS) is a progressive disease of the nervous system, for which there is no cure. It is one of the most common chronic diseases of the central nervous system in young adults.

MS Queensland works hard to be the first-choice for MS information, education, treatment, care and support across Queensland.

Our vision is a world free from MS and its devastating impact. We exist to help people living with MS to get the best out of life; to advocate for change and to search for a cure.

In Queensland, nobody has a better knowledge of the disease nor assumes a greater role in education and raising awareness of MS than us. We play a pivotal role in quality control and ensuring that people with MS are having their needs met, and in advocating on their behalf.

For more information, please visit the MS Queensland website www.msqld.org.au.

Parkinson’s Queensland

Parkinson’s is a progressive neurological condition that affects people from all walks of life. It is quite common, with approximately 80,000 Australians, including over 17,000 Queenslanders living with Parkinson’s.

Parkinson’s Queensland aims to alleviate the distress experienced by people who suffer from Parkinson’s disease or related disorders, by offering training, information and assistance.

We work collaboratively with other community service providers and allied health professionals to provide greater public understanding of the impact of these illnesses and the limitations and special needs of those affected. We also encourage research into the cause and treatment of Parkinson’s disease and related disorders.

For more information, please visit the Parkinson’s Queensland website www.parkinsons-qld.org.au.