Loading...
FAQS 2017-05-30T06:20:50+00:00

Learn more about the NeuroCare Network and the issues affecting people living with progressive neurological and neuromuscular disease in Queensland.

What is progressive neurological and neuromuscular disease (PND)?

Progressive neurological and neuromuscular disease is a broad term that refers to a range of diseases that result in a progressive deterioration in body function and are likely to affect a person for life. This includes Alzheimer’s and dementia, epilepsy, Huntington’s, motor neurone (MND), multiple sclerosis (MS), muscular dystrophy (MD) and Parkinson’s among others. While the disease causes are different, a person diagnosed with one of these diseases is likely to experience common challenges and will need similar access to referral and health care services and family support at some point. These common needs are the focus of the NeuroCare Network.

What does the NeuroCare Network do?

The NeuroCare Network works together to explore ways to secure better outcomes for people living with progressive neurological and neuromuscular disease. For example, seven of the partners are currently working on a pilot project in Townsville called Spark NeuroCare. This will test how we can deliver coordinated care services for people living with progressive neurological and neuromuscular disease in Townsville – while addressing the significant unmet need for services in this area. We’ll use what we learn in Townsville to demonstrate how the concept could be rolled out to the rest of Queensland.

Where do you get funding from?

The NeuroCare Network partners have contributed funding to establish the network and explore some of the priority projects. To date, projects have been funded by contributions from participating alliance partners. In addition, the Queensland state Government (Queensland Health) has contributed one-off funds towards the pilot project in Townsville called Spark NeuroCare. However, additional funding and philanthropic support is required to meet the costs of other pilot projects and feasibility studies to obtain the ‘proof of concept’ that we need to deliver better shared outcomes for adults and children living with progressive neurological and neuromuscular disease.

Why do you need a NeuroCare Network?

Despite our commitment, a significant proportion of the 190,845 people our partner organisations represent in Queensland are still unable to access the necessary information, support and care they need to manage their lives. The level of cooperation and collaboration between providers of care in health, community and disability sector is poor. Collectively, our partner organisations have significant experience (more than 223 years combined in fact), expertise, human and materials resources and key efficiencies could be obtained by working better together – both strategically and operationally.

Will the NeuroCare Network replace the need for separate organisations?

No. The aim is to deliver more coordinated solutions of care while maintaining the unique specialist and background knowledge of each representative organisation. Our strength comes from being a vibrant network of individual organisations working together to overcome the common challenges of our customers.

How did the NeuroCare Network form?

The NeuroCare Network was founded in June 2013 by Lincoln Hopper, CEO of MS Queensland. Since then, Lincoln has led the CEOs of the ten other involved not-for-profit organisations to find ways of working more effectively and efficiently together to better serve people across Queensland. In 2014 Westpac Bank acknowledged the significant effort to start-up the NeuroCare Network through a national ‘Partnerships for Purpose’ Community Leaders Award. Today, the NeuroCare Network continues to work on common developments influencing each organisation including funding, policy, legislation, service delivery and care models and national developments including the National Disability Insurance Scheme (NDIS). Collectively they engage all levels of government on issues of common interest and concern. This is particularly important as the not-for-profit sector experiences significant change with the introduction of the NDIS in Queensland from July 2016.